Miles seems to be making progress. However, pain management has been tricky. Miles has very few ways of indicating pain, and most of the time it's more that we can recognize the signs rather than him directing the information to us. In some ways, he is suffering more than when he had the cast. His therapists have warned us to make sure that he doesn't associate pain with movement. Fortunately, we don't believe he has, so it shouldn't impede his physical therapy (which we'll resume next week). He is now off the valium, which is good. Miles does not wean well off of valium—we'd rather not go into the details, but it's not pretty. Unlike other children, Miles seems to have more pain in the morning rather than the evening, so, we've been giving him half doses of the Tylenol-3 in the mornings. He does not seem to need more than one or two doses per day. This does not mean that he his pain free. He still does not like being moved from one position to another, but gets comfortable quickly once placed.
We have also found that his new pelvis is far more stable than before. He sits up really well (no falling over to the left side any more!) and looks really good sitting. It is clear now that his left leg is still about an inch to an inch and half shorter than the right leg. His orthopedist warned us about this after the surgery. They had to remove some bone from his leg which wasn't originally anticipated. We hope this doesn't cause problems later.
His infection also seems to be clearing up. Hopefully this means he'll be able to go to the pool this week. With the dry, hot weather we have been having, it would be nice for all of us to take a dip!
Annie
Miles sitting up really nicely in his bath seat. He was not able to sit up this well independently before the surgery.
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